Recently diagnosed with Scleroderma same day I was laid off
I was diagnosed with Rhuematoid Arthritis at 30, then after 3 more doctors and several tests, told I had Lupus. Then i started a new job so I got new health insurance. I had to go to more different doctors within their "network". My new Rhuematologist seems to think it is Psoriatic Arthritis, which actually fits my symptoms a whole lot better than the first two. On the same day I got laid off in June of 2009, my doctor had called me to tell me that he thinks I have Scleroderma on top of the Psoriatic Arthritis. Scleroderma is pretty serious from what I have read or can be. It hardens your intestines including your skin and can eventually kill you. I am now having to go back to school for employment as I cannot find a job in our present economy-even though I am already a college graduate. I am surviving on 263 a week in unemployment benefits that will run out in less than a year and now have to refuse the doctors prescriptions for me because they cost too much. I have started to take Methotrexate again (a cancer drug) that has some known success for Psoriatic Arthritis patients because quite simply it is all I can afford. I am mother, was a tax payer, will be again and there are days I am scared to death of what may come from this disease. I was asked by a recruiter recently if I had considered nursing as a profession, and had to answer honestly, NO. No because of the physical strain, no because of the long hours on my feet, and no because of what i will see in Americas hospitals. People like me who didn't ask to get sick getting turned down for health care because of preexisitng conditions that they did not create. That they are born with. It is a sick, twisted reality to have to wake up every morning knowing that if something happens to me my kids or husband could be saddled with my medical debt for the rest of their lives. We need free health care in this country regardless of income, race, religion, preexisting condition, and we need it NOW!

